Flushed, tearful, exhausted and unable to control her own body, Céline Dion endures an agonizing ten-minute seizure in new scenes from a forthcoming documentary that lays bare her battle with Stiff Person Syndrome (SPS).
The Canadian singer is seen gasping for breath as medical professionals desperately attempt to alleviate her painful muscle spasms while a camera crew quietly films the ordeal.
Dion, 56, was diagnosed with the condition, a rare autoimmune neurological disorder that causes muscle stiffness and uncontrollable spasms, in 2022.
Her subsequent struggles are set to be documented in new Amazon Prime release I Am: Céline Dion – a heartbreaking look at the superstar’s daily life since making the decision to withdraw from the public eye while coming to terms with SPS and its debilitating effects.
And a new clip, shared ahead of its release on June 25, captures Dion as her stricken body goes into ‘crisis’ during a filmed consultation with medical professionals.
Céline Dion insisted that no changes be made to a harrowing new documentary about her battle with Stiff Person Syndrome (SPS) after she was filmed experiencing a lengthy spasm
The Canadian singer was diagnosed with the condition, a rare autoimmune neurological disorder that causes muscle stiffness and uncontrollable spasms, in 2022
In clear distress, Dion looks on helplessly as doctors gently lay her in a comfortable position and check her vitals.
All the while, her bare-feet remain rigid as she battles the debilitating effects of the rare condition.
After receiving assistance the singer is finally able to sit upright and covers herself in a blanket before admitting her embarrassment at losing control of her body in front of the cameras.
She tells the camera: ‘Everytime something like this happens it makes you feel so embarrassed and so, like, I don’t how to express it, it’s just… you know, like to not have control of yourself..’
An emotional Dion breaks down while admitting she hasn’t given up on resuming her stage career at some point in the future.
She said: ‘I still see myself dance and sing. I always find plan b and plan c, you know. That’s me. If I can’t run, I’ll walk. If I can’t walk, I’ll crawl. But I won’t stop. I won’t stop.’
Taylor told the PA news agency she was thinking “should I film it” when Dion went “very quickly” into the attack, but decided to continue as the singer, known for her powerful voice, had told her not “to ask permission to film something”.
She added: ‘So in that first 30 seconds, I was not focused on filming, I was the sound person and my cinematographer was there.
A distressing clip from the film finds Dion needing assistance as her body starts to spasm
A medical professional is seen assisting the singer as her stricken body goes into ‘crisis’
It shows her grunting, appearing to be in pain, while lying on her back in spasm, unable to move
The singer is in obvious distress as a medical professional lays her on a bed
Dion is placed in a position that protects her head and neck after going into a lengthy seizure
The singer’s bare feet appear to be rigid during the ordeal, which lasts for almost 10-minutes
After receiving assistance the singer is finally able to sit upright and covers herself in a blanket before admitting her embarrassment at losing control of her body in front of the cameras
‘But there were several people in the room and everyone was doing what they were trained to do to help her, they’d all been given medical training on what to do if this happens.
‘So she was in the best hands she could be in. If they needed an extra pair of hands, I would have dropped my microphone and gotten in (to) help them without a doubt. But I did decide to keep filming, knowing that we didn’t have to use it.’
The documentary film’s director Irene Taylor says Dion was adamant that the near 10-minute scene in which she experiences a lengthy spasm be retained.
Dion revealed her diagnosis in 2022 and has previously said it that can cause spasms so strong that can break ribs and feel like strangulation of the throat.
Taylor added that Dion said “we can always talk about it later if I’m uncomfortable with it” and “just basically stayed out of the way”.
She also said: ‘After the episode occurred, and she sang that beautiful song, she left in very high spirits. Believe it or not, she left that location in very high spirits. And she was actually taking care of me.
‘She squeezed my hand and she was just about to drive away in the car, she reached her hand out the window. And she said, “Don’t worry about what happened”.
‘And I think that was her way of saying, if you filmed that you can you know, it’s OK. It’s OK. I don’t know what it looked like. And I thought, yeah, but she doesn’t know what it looks like. Like… she was only semi-conscious. So ultimately, I did edit it into the film.
‘And what you see in this final film is exactly what I showed her the first time. She didn’t want me to change it at all.’
Her struggles are set to be documented in new Amazon Prime release I Am: Céline Dion – a heartbreaking look at the superstar’s daily life with SPS
The Canadian star has cancelled all live performances while she battles the rare condition
The documentary director Irene Taylor says Dion was adamant that the near 10-minute scene in which she experiences a lengthy spasm be retained
When asked why she thinks Dion grabbed her hand, she replied saying she thought she was “hiding” her emotions.
‘In that moment when she reached out and grabbed my hand,” she said. “Maybe I was showing how upset I was, but I was so relieved that she was OK.
“But I was also inspired because she sang and she performed and I had never seen her in concert. And I was like this is what it must be like to see Céline in concert.
‘Because I was like so overcome with, you know, this like ‘Hell yeah’, like (I felt) emotion (on) me. You know, when she did all of her Céline Dion things, her mannerisms, and so, I really appreciated that.’
It shows her grunting, appearing to be in pain, while lying on her back in spasm, unable to move. She is attended by medical workers, before recovering and singing
Dion revealed her diagnosis in 2022 and has previously said it that can cause spasms so strong that can break ribs and feel like strangulation of the throat
Taylor, also known the Oscar-nominated documentary The Final Inch and Beware The Slenderman, said: ‘I would have never shown it if she didn’t want me to, that’s just the honest truth. It’s too personal.’
Taylor says that Dion “never asked me how I was editing something”, but explained “it’s fair to say that she set the film on the course it took by wanting to give a lot of herself”.
She said: ‘I couldn’t have done it without her will, you know the will is very powerful and I think any public figure can decide to let go of this narrative that’s been constructed about them for a long time, because sometimes they don’t even have control of that narrative, it’s like, it becomes a force of its own.’
Dion previously cancelled her Courage world tour as she continues to battle the neurological disorder.
The singer had originally postponed her planned shows after publicly sharing her Stiff Person Syndrome diagnosis in December 2022.
She took to Instagram in May 2023 to announced that with ‘tremendous disappointment’ she was unable to perform on her world tour, adding she’s ‘working really hard to build back her strength’.
Posting an image of her cancelled tour dates, she wrote: ‘It is with tremendous disappointment that we have to announce today the cancellation of the Courage World Tour.
‘I’m so sorry to disappoint all of you once again. I’m working really hard to build back my strength, but touring can be very difficult even when you’re 100%.
‘It’s not fair to you to keep postponing the shows, and even though it breaks my heart, it’s best that we cancel everything now until I’m really ready to be back on stage again.
‘I want you all to know, I’m not giving up… and I can’t wait to see you again!’
Dion also shared an image of the full list of tour dates that had been cancelled, including shows in France, Belgium, Denmark, Poland and the UK, and a statement announcing the news.
The statement added: ‘We do have every hope that someday soon, Celine will be able to come to all of these cities in Europe to perform for her amazing fans, but that time simply is not now.’
Directed by Academy Award nominee Taylor, I Am: Céline Dion has been available worldwide on Prime Video from June 25.
#Céline #Dion #shares #heartbreaking #footage #suffering #crisis #seizure #ten #minutes #reveals #gave #devastating #health #issues #years #Stiff #Persons #Syndrome #diagnosis
